Policy Issues

WASHINGTON – Today, Senator Tim Scott’s (R-S.C.) and Senator Cory Booker’s (D-N.J.) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 passed out of the Senate Committee on Health, Education, Labor and Pensions. This legislation reauthorizes the Health Resources and Services Administration’s Sickle Cell Disease Treatment Demonstration Program beyond fiscal year 2023 through fiscal year 2028.

The All Copays Count Coalition comprises more than 80 national 501c3 non-profit, non-partisan patient advocacy and provider organizations representing millions of people living with serious, complex, chronic illness. The people we represent need full and ongoing access to medical care, including specialty medications, to treat their conditions and to keep them healthy.

H. 3618 General Bill Summary: Pharmacy Benefits. Sponsor: Rep Henegan. Introduced in the House on January 11, 2023.

H. 3309 General Bill Summary: Seizure Safe Schools Act. Sponsors: Reps. Gilliam, Pope, Erickson, Bradley and Davis. Introduced in the House on January 10, 2023.