Voicing your concerns with South Carolina’s elected officials is one of the best ways to affect meaningful changes in policies that remove barriers to, or provide access for, quality health care and treatment access for those living with chronic and rare diseases. Advocacy provides an important educational tool to help educate legislators and policy makers. The Collective invites our patient advocacy groups serving South Carolinian’s to join in the action of our state advocates who work to raise awareness. Learn about the various state advocacy awareness days happening at the state capitol and take part!
Members of the Bleeding Disorders Association of South Carolina gathered for training on Rare Disease Day in preparation for their Annual State Awareness and Legislative Day held on March 1st at the State Capitol in Columbia. The 2023 priorities were advocating for passing H.3618 and continued funding for the state Hemophilia Assistance Program. Together with Omni Productions, the Bleeding Disorders Association of South Carolina created a video sharing their advocacy work. Community members shared their experiences living with rare chronic conditions in an effort to raise awareness and understanding throughout the community.
Join the South Carolina Advocacy Coalition, Ambassadors, and members of the community as we come together to celebrate the advocacy work of the many members of the bleeding disorders community who work hard to address barriers in access to care and treatment, and to raise their voices of concerns to promote change. Learn how to be involved and what you can do to shape the future of treatment care for all affected by bleeding disorders in South Carolina and around the nation.
Interested in joining our quarterly online support group? Our group is open to people with epilepsy and caregivers. We ask that all participants be at least 14 years old.
Our group facilitator, Paige, is a licensed Social Worker and Life Coach. Oh – did we mention that she has epilepsy? She can definitely help anyone on the same journey.
It is important for you to get to know who your Senators and Representative are so you can become an Advocate for yourself and your family. The following link allows you to find your Senators and Representatives for both the South Carolina State Legislature and the U.S. Congress who are currently serving you!
To use the search tool, you will first enter your address information into the form provided and submit the search.