Bleeding Disorders Association of South Carolina: State Capitol Days
State Capitol Advocacy Days: February 24-25, 2026 February 24, 2026 (Training Evening) 4pmFebruary 25, 2026 (Legislative Meetings) 8am – 2pm Hosting Hotel:TBD Join us for
Voicing your concerns with South Carolina’s elected officials is one of the best ways to affect meaningful changes in policies that remove barriers to, or provide access for, quality health care and treatment access for those living with chronic and rare diseases. Advocacy provides an important educational tool to help educate legislators and policy makers. The Collective invites our patient advocacy groups serving South Carolinian’s to join in the action of our state advocates who work to raise awareness. Learn about the various state advocacy awareness days happening at the state capitol and take part!
State Capitol Advocacy Days: February 24-25, 2026 February 24, 2026 (Training Evening) 4pmFebruary 25, 2026 (Legislative Meetings) 8am – 2pm Hosting Hotel:TBD Join us for
Members of the Bleeding Disorders Association of South Carolina gathered for training on Rare Disease Day in preparation for their Annual State Awareness and Legislative Day held on March 1st at the State Capitol in Columbia. The 2023 priorities were advocating for passing H.3618 and continued funding for the state Hemophilia Assistance Program. Together with Omni Productions, the Bleeding Disorders Association of South Carolina created a video sharing their advocacy work. Community members shared their experiences living with rare chronic conditions in an effort to raise awareness and understanding throughout the community.
James R. Clark Memorial Sickle Cell Foundation – 2026 Calendar of Events
The South Carolina Rare Disease Advisory Council (RDAC) will be hosting its 3rd annual Rare Disease Symposium on Friday, February 27th at Segra Park in Columbia, SC. A virtual option is also available to those who cannot attend in person. The program will last from 10am-2pm, with in-person check-in beginning at 9:30am.
It is important for you to get to know who your Senators and Representative are so you can become an Advocate for yourself and your family. The following link allows you to find your Senators and Representatives for both the South Carolina State Legislature and the U.S. Congress who are currently serving you!
To use the search tool, you will first enter your address information into the form provided and submit the search.