The Palmetto Health Collective was formed to bring together patient advocacy organizations in South Carolina to share and collaborate on the work and missions of our organizations, including our success and the barriers we face in serving our members. This is a culmination of many years’ collaboration. Our desire is to better connect healthcare advocacy organizations, research universities, state government and healthcare agencies in South Carolina to address the many health-related barriers individuals and their families still face today living with chronic conditions and rare diseases. The consortium will strive to bring awareness in addressing gaps in accessing treatment and healthcare coverage, as well as other barriers, that hinder those affected within South Carolina to live quality lives. The PCH meets virtually each month on the second Friday at 11:00am with members, partners, and supporters, and gathers in person as opportunities present.
Next PCH meeting is January 5th, 2024 at 11am. Contact: Drew Clawson
Drew Clawson, Kinard Consulting
State and National Patient Advocacy Organizations and nonprofits who work and advocate to support chronic and rare disease patients in South Carolina.
Industry, Consultants, Researchers, Hospitals Associations and Universities who support patient access to treatment.
The Collective works with many national and South Carolina nonprofits and State Agencies such as The Department of Health and Environmental Control, Medical and Hospital Associations, Medical Universities, and welcomes the collaboration of many patient advocacy voices. Meet some of our Collective participants.
Our mission is to raise awareness for and advocate on behalf of persons with bleeding disorders and their families; provide education and supportive services; and promote ongoing research to improve the quality of life for those affected.
To raise awareness for Sickle Cell Disease. The mission of the agency is to enhance productive lifestyles of individuals with Sickle Cell diseases through the provision of supplementary health services supportive of medical treatment. To educate the public concerning Sickle Cell Disease, reduce the suffering of Sickle Cell patients and their parents by assisting them with basic human needs and medical services, improve the quality of life of children suffering from Sickle Cell Anemia.
The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency through fostering a community empowered by advocacy, education, and research.
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.
The mission and purpose of the Foundation is to promote the public welfare through the development of quality pharmaceutical services; to encourage, provide for, and engage in scientific research, professional study, and the advancement to the science of pharmacy; to improve the availability of professional pharmaceutical services to the public.
We are here to support those living with epilepsy and their loved ones in the state of South Carolina. Our purpose is to advocate, educate, and inspire those living with epilepsy and help then lead a normal life.