Our Collective's Organizations

The Palmetto Health Collective was formed to bring together patient advocacy organizations in South Carolina to share and collaborate on the work and missions of our organizations, including our success and the barriers we face in serving our members. This is a culmination of many years’ collaboration. Our desire is to better connect healthcare advocacy organizations, research universities, state government and healthcare agencies in South Carolina to address the many health-related barriers individuals and their families still face today living with chronic conditions and rare diseases. The consortium will strive to bring awareness in addressing gaps in accessing treatment and healthcare coverage, as well as other barriers, that hinder those affected within South Carolina to live quality lives. The PCH meets virtually each month on the second Friday at 11:00am with members, partners, and supporters, and gathers in person as opportunities present.

Next PCH meeting is January 5th, 2024 at 11am. Contact: Drew Clawson

Drew Clawson, Kinard Consulting

drew@kinardconsulting.net, 843-530-7953


State and National Patient Advocacy Organizations and nonprofits who work and advocate to support chronic and rare disease patients in South Carolina.


Industry, Consultants, Researchers, Hospitals Associations and Universities who support patient access to treatment.


Organizations and state agencies who support and care greatly about patient health care.


Collective Participants

The Collective works with many national and South Carolina nonprofits and State Agencies such as The Department of Health and Environmental Control, Medical and Hospital Associations, Medical Universities, and welcomes the collaboration of many patient advocacy voices.  Meet some of our Collective participants.


Our mission is to raise awareness for and advocate on behalf of persons with bleeding disorders and their families; provide education and supportive services; and promote ongoing research to improve the quality of life for those affected.

To offer education, support , and advocacy for those with mental illness and their families

To end cancer as we know it for everyone.

The mission of the National Psoriasis Foundation (NPF) is to drive efforts to cure psoriatic disease and improve the lives of those affected.

To discover treatments and a cure for ALS, and to serve, advocate for and empower people affected by ALS to live their lives to the fullest.

Get access to lifesaving information and support, connect with others in the prostate cancer community, and take action to ZERO out prostate cancer.

Government Relatons with a focus on Patient Group Alliance in South Carolina.

To raise awareness for Sickle Cell Disease. The mission of the  agency is to enhance productive lifestyles of individuals with Sickle Cell diseases through the provision of supplementary health services supportive of medical treatment.  To educate the public concerning Sickle Cell Disease, reduce the suffering of Sickle Cell patients and their parents by assisting them with basic human needs and medical services, improve the quality of life of children suffering from Sickle Cell Anemia.

The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency through fostering a community empowered by advocacy, education, and research.

The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.

The mission and purpose of the Foundation is to promote the public welfare through the development of quality pharmaceutical services; to encourage, provide for, and engage in scientific research, professional study, and the advancement to the science of pharmacy; to improve the availability of professional pharmaceutical services to the public.

The mission of the James R. Clark Memorial Sickle Cell Foundation is to optimize the social, psychological, and physiological well-being of individuals with sickle cell disease and to decrease the incidence of sickle cell disease through genetic screening, counseling, and education.

To optimize the quality of health care and the qulaity of life for individuals and families impacted by the presences of sickle cell anemia disease.

We are here to support those living with epilepsy and their loved ones in the state of South Carolina. Our purpose is to advocate, educate, and inspire those living with epilepsy and help then lead a normal life.

We will cure MS while empowering people affected by MS to live their best lives.

To be a leader in the quest to cure ankylosing spondylitis and related diseases, and to empower those affected to live life to the fullest.

The mission of Lupus and Allied Diseases Association, Inc., is to advocate for those affected by lupus and allied diseases through awareness and research program initiatives to improve quality of life.

The Coalition for Hemophilia B, Inc., strives to make quality of life the focal point of treatment for people with hemophilia B and their families through education, empowerment, advocacy, and outreach.