Chronic and rare disease patients face battles every day that other Americans do not have to deal with. From access to adequate health care, to the cost of treatment and medications to treat their conditions—Policy issues can present opportunities to make meaningful, lasting change for everyone.
Greenville News: Your TurnSue Martin and Rhonda YoungGuest columnists Some South Carolina patients are being forced to choose between affording health care or putting food
Patients in South Carolina often rely on copay assistance to afford their medications. However, health insurers and pharmacy benefit managers (PBMs) are using the assistance
In a major victory for patients who depend on prescription drugs, Judge John D. Bates of the U.S. District Court for the District of Columbia struck down a Trump administration federal rule that allowed health insurers to not count drug manufacturer copay assistance towards a beneficiary’s out-of-pocket costs.
State and National Patient Advocacy Organizations and nonprofits who work and advocate to support chronic and rare patients in South Carolina
Industry, Consultants, Researchers, Hospitals Associations, Universities who support patients access to treatment
Organizations and state agencies who care greatly about patient health care
WASHINGTON – Today, Senator Tim Scott’s (R-S.C.) and Senator Cory Booker’s (D-N.J.) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 passed out of the Senate Committee on Health, Education, Labor and Pensions. This legislation reauthorizes the Health Resources and Services Administration’s Sickle Cell Disease Treatment Demonstration Program beyond fiscal year 2023 through fiscal year 2028.
The All Copays Count Coalition comprises more than 80 national 501c3 non-profit, non-partisan patient advocacy and provider organizations representing millions of people living with serious, complex, chronic illness. The people we represent need full and ongoing access to medical care, including specialty medications, to treat their conditions and to keep them healthy.
H. 3618 General Bill Summary: Pharmacy Benefits. Sponsor: Rep Henegan. Introduced in the House on January 11, 2023.
H. 3309 General Bill Summary: Seizure Safe Schools Act. Sponsors: Reps. Gilliam, Pope, Erickson, Bradley and Davis. Introduced in the House on January 10, 2023.
