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What Concerns South Carolina?

Chronic and rare disease patients face battles every day that other Americans do not have to deal with. From access to adequate health care, to the cost of treatment and medications to treat their conditions—Policy issues can present opportunities to make meaningful, lasting change for everyone.

More Than 105,000 South Carolina Residents Have Lost Medicaid Coverage Since June

More than 105,000 people have in South Carolina lost healthcare coverage since June due to the state’s unwinding of the COVID-19 continuous Medicaid coverage protections. Unfortunately, 93% of individuals who lost coverage did so for procedural or paperwork reasons, not because individuals are no longer eligible. Because quality and affordable healthcare is critical to the 693,000 South Carolina residents living with lung disease, the American Lung Association is calling on Governor Henry McMaster to pause Medicaid redeterminations to improve its process so fewer people lose access to healthcare.

Insurer and PBM Tactics are Shifting Higher Costs to Patients with Chronic and Complex Conditions

Health plans are increasingly using deductibles and coinsurance to shift more of the cost of care to chronically ill patients taking brand medicines. As data

Americans Want State Policymakers to Lower Out-of-Pocket Costs

Too many Americans are struggling to access and afford their health care. While policy debates about how to address these issues can seem never ending,

Members

State and National Patient Advocacy Organizations and nonprofits who work and advocate to support chronic and rare patients in South Carolina

Partners

Industry, Consultants, Researchers, Hospitals Associations, Universities who support patients access to treatment

Allies

Organizations and state agencies who care greatly about patient health care

Addressing Barriers to Care

Learn about some of the priorities many of our Collective Member Organizations are advocating for, and supporting!

Scott Sickle Cell Legislation Passes Out of Committee

WASHINGTON – Today, Senator Tim Scott’s (R-S.C.) and Senator Cory Booker’s (D-N.J.) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 passed out of the Senate Committee on Health, Education, Labor and Pensions. This legislation reauthorizes the Health Resources and Services Administration’s Sickle Cell Disease Treatment Demonstration Program beyond fiscal year 2023 through fiscal year 2028.

All Copays Count Coalition

The All Copays Count Coalition comprises more than 80 national 501c3 non-profit, non-partisan patient advocacy and provider organizations representing millions of people living with serious, complex, chronic illness. The people we represent need full and ongoing access to medical care, including specialty medications, to treat their conditions and to keep them healthy.

H. 3618 Pharmacy Benefits

H. 3618 General Bill Summary: Pharmacy Benefits. Sponsor: Rep Henegan. Introduced in the House on January 11, 2023.

H. 3309 Seizure Safe Schools Act

H. 3309 General Bill Summary: Seizure Safe Schools Act. Sponsors: Reps. Gilliam, Pope, Erickson, Bradley and Davis. Introduced in the House on January 10, 2023.

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Policy Issues

Uniting our partners in health