What Concerns South Carolina?

Chronic and rare disease patients face battles every day that other Americans do not have to deal with. From access to adequate health care, to the cost of treatment and medications to treat their conditions—Policy issues can present opportunities to make meaningful, lasting change for everyone.




Our Collective Member Organizations


State and National Patient Advocacy Organizations and nonprofits who work and advocate to support chronic and rare patients in South Carolina


Industry, Consultants, Researchers, Hospitals Associations, Universities who support patients access to treatment


Organizations and state agencies who care greatly about patient health care

Addressing Barriers to Care

Learn about some of the priorities many of our Collective Member Organizations are advocating for, and supporting!

Legislative Updates

Scott Sickle Cell Legislation Passes Out of Committee

WASHINGTON – Today, Senator Tim Scott’s (R-S.C.) and Senator Cory Booker’s (D-N.J.) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 passed out of the Senate Committee on Health, Education, Labor and Pensions. This legislation reauthorizes the Health Resources and Services Administration’s Sickle Cell Disease Treatment Demonstration Program beyond fiscal year 2023 through fiscal year 2028.

Read More »
All Copays Count Coalition

All Copays Count Coalition

The All Copays Count Coalition comprises more than 80 national 501c3 non-profit, non-partisan patient advocacy and provider organizations representing millions of people living with serious, complex, chronic illness. The people we represent need full and ongoing access to medical care, including specialty medications, to treat their conditions and to keep them healthy.

Read More »