Voicing your concerns with South Carolina’s elected officials is one of the best ways to affect meaningful changes in policies that remove barriers to, or provide access for, quality health care and treatment access for those living with chronic and rare diseases. Advocacy provides an important educational tool to help educate legislators and policy makers. The Collective invites our patient advocacy groups serving South Carolinian’s to join in the action of our state advocates who work to raise awareness. Learn about the various state advocacy awareness days happening at the state capitol and take part!
State Capitol Advocacy Days: February 25 – 26, 2025 February 25, 2025 (Training Evening) 4pmFebruary 26, 2025 (Legislative Meetings) 8am – 2pm Hosting Hotel:Courtyard by
Members of the Bleeding Disorders Association of South Carolina gathered for training on Rare Disease Day in preparation for their Annual State Awareness and Legislative Day held on March 1st at the State Capitol in Columbia. The 2023 priorities were advocating for passing H.3618 and continued funding for the state Hemophilia Assistance Program. Together with Omni Productions, the Bleeding Disorders Association of South Carolina created a video sharing their advocacy work. Community members shared their experiences living with rare chronic conditions in an effort to raise awareness and understanding throughout the community.
Join us for an Empowering Weekend for Adults with Epilepsy and their caregivers! Unwind, Connect & Flourish.
Join us for the Epilepsy Warriors Golf Tournament on Monday, November 18th in Simpsonville, SC. Registration begins at 9AM with a shotgun start at 10AM. Register by November 11th.
Join us on November 23rd for Glow Golf for Epilepsy. Illuminating fun for patients, families, friends & community!
You are invited to be a part of something extraordinary through this annual fundraiser. Together, we can improve the lives of people with epilepsy.
Join us for an evening of fellowship and worship on Sunday, November 10 at Freedom Church in Moncks Corner, SC! We are so blessed and excited to have the Walk with Jesus Tour coming to the Lowcountry! You’ll hear favorite songs and new ones, too. Let’s worship together!
It is important for you to get to know who your Senators and Representative are so you can become an Advocate for yourself and your family. The following link allows you to find your Senators and Representatives for both the South Carolina State Legislature and the U.S. Congress who are currently serving you!
To use the search tool, you will first enter your address information into the form provided and submit the search.
