Policy Issues

LEARN ABOUT THE POLICIES THAT ARE IMPORTANT TO THE PALMETTO HEALTH COLLECTIVE 

Chronic and rare disease patients face battles every day that other Americans do not have to deal with. From access to adequate health care, to the cost of treatment and medications to treat their conditions—Policy issues can present opportunities to make meaningful, lasting change for everyone. We invite you to learn about the policies that are important to the Collective that can help South Carolinian’s live healthy and productive lives. Help us support these important issues by joining our advocacy priorities.

Legislative Updates

Scott Sickle Cell Legislation Passes Out of Committee

WASHINGTON – Today, Senator Tim Scott’s (R-S.C.) and Senator Cory Booker’s (D-N.J.) Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act of 2023 passed out of the Senate Committee on Health, Education, Labor and Pensions. This legislation reauthorizes the Health Resources and Services Administration’s Sickle Cell Disease Treatment Demonstration Program beyond fiscal year 2023 through fiscal year 2028.

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All Copays Count Coalition

All Copays Count Coalition

The All Copays Count Coalition comprises more than 80 national 501c3 non-profit, non-partisan patient advocacy and provider organizations representing millions of people living with serious, complex, chronic illness. The people we represent need full and ongoing access to medical care, including specialty medications, to treat their conditions and to keep them healthy.

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