National Organization for Rare Disorders
Mission Statement
We improve the health and well-being
of people with rare disease by driving
advances in care, research and policy.
Driving Life-Saving Policy
NORD is the only independent and nonpartisan U.S. organization working at the intersection of care, research, policy, and community for all rare diseases. We work with national and state decision-makers to advance the following priorities:
- New and Better Therapies
- Access and Affordability of Prescription Drugs
- Comprehensive Health Insurance
- Expanding Telehealth Services
- Strengthening Policies to Support Timely Diagnosis